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The Sun Shines Brightly
Over The Muller Household
The
cause of Liz Muller's over 20 years of seizure history is still a mystery.
When she was five years old, she fell backwards off a porch about two
or three feet and hit her head on a brick. The brick broke and she was
given stitches for a large scalp laceration. She healed in the normal
amount of time without any complications.
By
the time Liz entered fifth grade she remembers having an aura similar
to a déjà vu or a "feeling like being there before."
Sometimes
she felt nausea too. However, those were the only unusual feelings she
experienced. Her studies went well and she went on to become a special
education teacher for 19 years.
One
day in 1980, Liz experienced her first big tonic clonic seizure while
standing before her students. She says, "I didn't know what to make
of it. Instantly, my world was changed as a result of it. From that
point on, I just remember visits to the neurologists and taking a lot
of medications."
Ironically,
many of her students experienced seizures too. Fortunately, Liz was
able to keep her job and most of her seizures occurred at night. She
says, "I'd wake up tired and feeling sluggish. But, I was always ready
to teach."
Four
years before her first seizure, Liz met Marcus Muller, a paramedic with
the San Marino Fire Department. It was a magnetic meeting for both of
them. Soon after, they were married. Eight years later their beautiful
daughter, Kellie arrived.
During
most of these years Liz's seizures were well managed with anti-epileptic
medications. Once in awhile she would have a break through seizure but
nothing of serious concern.
Then,
a few years ago, Liz's seizures grew worse and became unmanageable.
Her life became one doctor's visit after another with several anti epileptic
medications prescribed. She tried a total of eight medications without
success.
Her
spirits plummeted and she felt "life wasn't worth living like this."
She was losing her sense of independence and Liz didn't know what to
expect next.
In
March of 1999, Marc's dad saw a feature news article in the Los Angeles
Times on the Epilepsy and Brain Mapping Program at Huntington Memorial
Hospital.
Marcus
and her family encouraged her to take the necessary steps to determine
if she would be a candidate for surgery. After a series of image tests,
Liz was admitted to the Hospital for a seven day stay evaluation of
the origin, type and extent of her seizures. Then, Liz was admitted
to the hospital for another 20 days during a Phase II observation and
finally another six days for Phase III.
Although
her hospital stays were grueling, Liz and Marcus both say, "The nurses
were wonderful with their words of encouragement. The volunteers were
very helpful in bringing her the therapy dog to snuggle with."
After
five hours of surgery performed by Dr. Adam Mamelak, she says, "I feel
it was all worth it. My recovery took almost a full year, but I am now
free of seizures and medications. The sun shines a whole lot brighter
over us. I thank our Pastor, John Sims for his tremendous encouragement
and I know all of our prayers were answered."
In
addition to treasuring her "new life," Liz is now an active soccer mom
and a volunteer at Huntington Hospital.
Lynn Burlin Is Enjoying
Life To The Fullest
Lynn
Burlin grew up like any other precocious "kid in Southern California."
Up until fifth grade there was no stopping her. She was on the swim
team, earned good grades and loved arts and crafts from the time she
was old enough to pick up a pen.
Then
one day shortly before recess, she says, "I found myself talking but
no one was understanding me. They thought I was goofing off and interrupting
class. But, I was having my first seizure."
Within
a space of three minutes, Lynn's life would be changed forever. The
next thing she remembers were the endless series of tests and needles.
She
says, "When I returned to school, my friends were sorry for me but they
didn't want to discuss what had happened to me."
Because
of all of the medical treatments, and other interruptions in her studies,
her mother kept her back one year. She says, "I felt like I was being
punished."
At
first the medications worked up until she reached adolescence. Then,
her seizures began again in spite of the medications.
Undaunted,
Lynn remained active with her swim team, drill team and Little League
Softball activities. By her late teens, Lynn's seizures worsened. Her
medications were making her drowsy. And, she was depressed.
Her
Dad suggested she attend an epilepsy support group. It was at her second
meeting that she found the courage to seek a cure through surgery. After
a thorough evaluation, it was determined that Lynn was a good candidate
for surgery.
With
a successful surgery behind her, Lynn has been living life seizure and
medication free. She earned a degree in Art at Woodbury University.
She met and married Tom Burlin who surprised her with her first dream
car, a new silver Honda Prelude.
In
2000, Lynn began her own graphics business, Graphically Inclined where
she's been actively assisting clients with their logo designs and brochures.
In addition she volunteers her spare time to the Epilepsy Foundation
and EBMP.
Lu Cindy Duncan Lives
A Life Filled With Song
Some
time during the year 1961, as a one-year old baby, Lu Cindy Duncan began
having seizures. At first they were febrile seizures, eventually they
developed into "petit mal" or absence seizures.
Growing
up for her was a living nightmare. As she says, "School was not a pleasant
experience. I found it difficult to concentrate on my studies and my
classmates teased me terribly after I suffered from a seizure."
Fortunately,
Lu Cindy found a creative outlet playing the piano and singing. As a
child, she always hoped that she could perform in front of others without
thinking about having a seizure. As she says, "I became a Christian
accepting, Christ into my life at the age of nine years old. I always
remember praying to God hoping to be healed."
In
spite of her seizures, her faith remained strong. She graduated from
high school and enrolled in college. In 1981, three years into her studies,
she was offered a job "too good to pass up" and she began working for
the Federal Government.
She
says, "Everyone I worked with knew I had epilepsy and they were very
supportive of me. My supervisor even invited me to carpool with her
so my inability to drive was never an issue or a hindrance. I was fortunate
to be there and I felt God was watching over me."
From
1981 to 1986, Lu Cindy worked for a lot of interesting people with challenging
assignments. Eventually, she moved to Germany and worked on an Army
base. Unfortunately, her seizures progressed and she was diagnosed as
having psychomotor seizures. She says, "The seizures were happening
during the day and the night and my auras came in the form of stomach
pain."
As
opportunities happen, Lu Cindy moved back to California from Germany
in 1987. At that time her doctor referred her to Dr. William Sutherling.
She vividly remembers, "Upon my first visit with Dr. Sutherling, he
asked me if I had ever considered surgery as an option?"
Of
course I laughed and looked at him quizzically. Then, I began to think
about it. This was the first time I ever had a doctor mention surgery
to me before."
After
four years of exhausting all available medications and even participating
in a drug study, she says, "I got to a point of being tired of my life
the way it was and I was finally ready to see it changed."
On
June 4, 1991, Lu Cindy Duncan elected to have a right temporal lobectomy
and she has been seizure free with Tegretol ever since. Within six months
after her surgery, Lu Cindy obtained her first driving license. Now,
she's singing and playing the piano at her Church without ever worrying
about having another seizure again.
During
these past ten years, Lu Cindy lives as an inspiration for others. She
says, "The best part about my life is that I'm living independently
with a beautiful view of life.
"I
remember the peace I felt when I went into surgery. It was an answer
to my prayers and the timing, God's timing, was right."
Alex Minassian Is Looking
Forward To Life!
Now
that he is finally seizure free, auto mechanic Alex Minassian, has everything
to look forward to. Not so long ago, that wasn't the case.
Growing
up in Iran, Alex had lived with intractable epilepsy ever since he was
in the fourth grade.
For
many years his life seemed bleak with no hope of ever working full time
or driving the very cars he repaired for his extended family members.
Nor was the road toward a cure for his epilepsy an easy one.
When
his family moved to the United States, Alex's continuing seizures increased
in intensity and frequency over 10 years. During this time, it seemed
there was nothing that could control his seizures and hope was eluding
him.
Shortly
after learning about the Epilepsy and Brain Mapping Program, his aunt,
Tamara "Tammy" Arzoo made an appointment to meet with neurologist and
EBMP's Medical Director, Dr. William Sutherling. After careful evaluation,
Dr. Sutherling felt that the epileptic tissue in Alex's brain resulted
from a childhood bout with meningitis.
On
May 26, 1998, Alex underwent a three hour surgery, performed by Dr.
Adam Mamelak. Through the generous research support of an anonyomous
charitable foundation, funds were made available.
Alex's
life immediately brightened. He says, "I am so happy to have my life
now."
Mrs.
Arzoo adds, "We were always afraid Alex would fall and hurt himself.
Now, he can go walking by himself as well as cook and clean house by
himself without the fear of having a seizure."
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